Diane Tyler's Mom GA
Member Since 2018
Hi Janet, I wish she could put something on her ears, but she can't. No studies in Methyl B-12
FINALLY SAW MY DAD TODAY
- Thread starter Diane Tyler's Mom GA
- Start date
RachelG
Member Since 2021
That sounds like such a nice day together! Your relationship sounds sweet. It's always hard to see those we love in pain (osteoarthritis) but being there with him likely made his whole week! Such a relief to hear the place was nice, too. It can be hard to picture, but hopefully he is making friends and enjoying his days.
I have a lot of overlapping symptoms as Ashley, and can strongly relate to not being able to leave during a "flare up." I hope she is able to FaceTime with him soon!
You sound like a terrific advocate for her, and she sounds like a resilient person.
Diane Tyler's Mom GA
Member Since 2018
Aww thank you Sydney, yes do you believe that it's been around since the civil war.I'm very glad to hear you had a good visit with your dad. Sneak him an extra peep for me next time. I hope the optomologist appointment goes well, I'm glad you get to be with him when he goes. Hopefully he will get Facetime with Ashley soon, it must be hard for the both of them to not be able to see each other.
I'm sorry to hear about your daughter's disease. I had never heard of it before, it's crazy that it's been around since the civil war. I will be doing research on it today. I'm glad she has you, and I'm glad you have this forum. Vent all you need, and take all the time you need away. I'm so sorry, I wish there was something I could do to help ease her pain and your grief. You have such a loving heart, even when it feels like it's all too much. You say you are no saint, but I know some kitties that would beg to disagree. I will keep both you and Ashley in my prayers, strength to you both
Tyler's numbers are still looking great, hopefully he will put his big boy pants on and get his numbers down quickly after his dental appointment.
Most doctors haven't even heard of it, I have to explain it to them.
One thing they try is Ketamine Infusions, you get then for 2 weeks and then after that
3 per month for 2 months. It helps some people but did nothing for Ashley.
Plus you have to do them for the rest of your life.
They can put in stimulators but there were so many people that had to have them removed because it made them worse. Ashley would never risk that and I wouldn't either.
Ashley misses him like crazy and so does my dad.
Thank you for the kind words.
Again I'm so sorry about Moo Moo, I hope you are doing better, she was such a beautiful kitty.
I still miss Perry so so much and I'm sure you miss Moo Moo like crazy.
Why oh why do these precious babies have to have all these diseases
Last edited:
Katherine&Ruby
Member Since 2020
I'm so glad you got to see your dad. So sweet that you did a little grooming for him. I did that for my dad before he died many years ago. You're a good daughter, mother, and human being. And you have wicked taste in rock stars. 
Hugs to you.
Hugs to you.
Diane Tyler's Mom GA
Member Since 2018
Hi Rachel, thank you, I'm so sorry that you also hear about your health issues, I really am. Praying you also get some relief ♥That sounds like such a nice day together! Your relationship sounds sweet. It's always hard to see those we love in pain (osteoarthritis) but being there with him likely made his whole week! Such a relief to hear the place was nice, too. It can be hard to picture, but hopefully he is making friends and enjoying his days.
I have a lot of overlapping symptoms as Ashley, and can strongly relate to not being able to leave during a "flare up." I hope she is able to FaceTime with him soon!
You sound like a terrific advocate for her, and she sounds like a resilient person.
Diane Tyler's Mom GA
Member Since 2018
Hi Katherine, so sorry about your dad ♥I love all the rock bands from the 60's and 70's.I'm so glad you got to see your dad. So sweet that you did a little grooming for him. I did that for my dad before he died many years ago. You're a good daughter, mother, and human being. And you have wicked taste in rock stars.
I don't know how the kids now can listen to the garbage they listen to. It drives me crazy. ♥
Pamela & Amethyst
Member Since 2016
JanetNJ
Member Since 2016
I looked up complex regional pain syndrom b12 methylcobalamin and there's a little about it. Certainly is shown to help with peripheral nerve pain so it couldn't hurt to take even if it helps only slightly.
Diane Tyler's Mom GA
Member Since 2018
Thanks Janet I'll look into it.
JanetNJ
Member Since 2016
I have a very little taste of what she deals with. I have a very large tumor that presses against my lateral femoral nerve sometimes. The pain can be intense and that's just in one spot. Fortunately for my issue can find some relief with certain stretches that glide the nerve to unpinch it. I can imagine this kind of pain being wide spread. When mine flares it's enough to take my breath away and grab the wall crying.Thanks Janet I'll look into it.
Diane Tyler's Mom GA
Member Since 2018
I'm so sorry you are dealing with that Janet. The pain with Ashley sometimes will make her vomit. It just really sucks
thebigfuzz
Member Since 2012
(((((Diane)))))
I’m so sorry to hear about what Ashley is going through. My hubby (Mike) is permanently disabled with vestibular neuropathy in both ears, and sometimes the flares give him TN pain/involvement - which isn’t fun. He describes it as pulsating, hot, burning, shooting pain like his ears and face are being branded. His face swells when he has a TN flare
Not the same as Ashley, but daily pain, migraines, nausea, dizziness and balance issues are something he is intimately familiar with. Luckily, he doesn’t have sound sensitivity, as music is his passion. Some of the prescribed medications were good, but actually finds CBD to be the most effective pain reliever. Botox is recommended sometimes, but he hasn’t done that yet. Good days, and bad days, of course...as is the case with most disabilities.
Our heart goes out to you and Ashley And your Dad
I’m so sorry to hear about what Ashley is going through. My hubby (Mike) is permanently disabled with vestibular neuropathy in both ears, and sometimes the flares give him TN pain/involvement - which isn’t fun. He describes it as pulsating, hot, burning, shooting pain like his ears and face are being branded. His face swells when he has a TN flare
Not the same as Ashley, but daily pain, migraines, nausea, dizziness and balance issues are something he is intimately familiar with. Luckily, he doesn’t have sound sensitivity, as music is his passion. Some of the prescribed medications were good, but actually finds CBD to be the most effective pain reliever. Botox is recommended sometimes, but he hasn’t done that yet. Good days, and bad days, of course...as is the case with most disabilities. Our heart goes out to you and Ashley
And your Dad
Diane Tyler's Mom GA
Member Since 2018
Hi Tanya, I'm so sorry your husband has to deal with all of this.(((((Diane)))))
I’m so sorry to hear about what Ashley is going through. My hubby (Mike) is permanently disabled with vestibular neuropathy in both ears, and sometimes the flares give him TN pain/involvement - which isn’t fun. He describes it as pulsating, hot, burning, shooting pain like his ears and face are being branded. His face swells when he has a TN flare
Our heart goes out to you and Ashley
Yes I know TR pain is excruciating. My heart goes out to him ♥
She has tried CBD and medical marijuana, did not help.
Please give your husband my best ,he also is a warrior ♥
Tina Marie (GA) and Jan
Member Since 2019
Diane,
Big hugs. I haven't responded because I keep reading more about Ashley's painful condition, and wishing something could help that you haven't tried.
Tanya mentioned Botox, and I had seen talk of it. It peaked my interest; I know people who have gotten a lot of relief from migraines with Botox.
Soft happy and soothing colors, and gentle streams of love to you and Ashley. Praying for help.
I hope the great visit with your dad sticks with you, and that Ashley looks forward to seeing Grandpa!
Lots of hugs.
Big hugs. I haven't responded because I keep reading more about Ashley's painful condition, and wishing something could help that you haven't tried.
Tanya mentioned Botox, and I had seen talk of it. It peaked my interest; I know people who have gotten a lot of relief from migraines with Botox.
Soft happy and soothing colors, and gentle streams of love to you and Ashley. Praying for help.
I hope the great visit with your dad sticks with you, and that Ashley looks forward to seeing Grandpa!
Lots of hugs.
thebigfuzz
Member Since 2012
I’m sorry to hear that. What may work is so unique to the individual. For Mike, he takes blood pressure meds (he doesn’t have high BP), NSAIDS and CBD by vape. The CBD oil didn’t work, but the vape did, once he figured out what % CBD he needed and sativa vs. indica. And when he needed which one. It was quite a science...Topical CBD, TENS or ice for TN pain, etc.
Hang in there Ashley
I think he is a warrior and am in awe of his positivity.
Diane Tyler's Mom GA
Member Since 2018
Hi Jan, you are so sweet, thank you for even reading about it♥
I really appreciate it. There is so much more to it that is not even on the internet.
Thank you so much ♥
Diane Tyler's Mom GA
Member Since 2018
Hi Tanya I'm happy to hear some of the strains help him.All my best for him ♥I’m sorry to hear that. What may work is so unique to the individual. For Mike, he takes blood pressure meds (he doesn’t have high BP), NSAIDS and CBD by vape. The CBD oil didn’t work, but the vape did, once he figured out what % CBD he needed and sativa vs. indica. And when he needed which one. It was quite a science...Topical CBD, TENS or ice for TN pain, etc.
Hang in there Ashley
I think he is a warrior and am in awe of his positivity.