9/9 Sebastian +9 263 AMPS 270 +4 230 +8 214. So long and thanks for all the fish.

Justin & Sebastian

Member Since 2019
Yesterday

263@+9
AMPS 270, B-0HB 0.3, 11lbs 15oz. He ate well last night, whole cup of morsels. Not hungry yet this morning but I'll give him an hour before I break out the syringes. Looking like BG is bouncing.
 
Bella has tiki hut open this am, go check it out
Hope he eats for u this am, his weight is going up isn't it, havent been on forum for a cpl days
 
Yeah his weight is up this morning. It had been wobbling around 11lbs 12oz for the past few days. He did wind up eating this morning, just took him a few minutes to get ready for it.
 
Glad he ate, and so nice to see that green yesterday after all this time! Go Sebastian!
Have a great day Justin!
 
214@+8.

This will be my last post. Seems I'm no longer welcome here by the little "experts" clique. Shame, cause I was enjoying supporting and progressing together with some of you. Best of luck to everyone.
 
And I've gotten some downright bad and contradictory advice. @@Wendy&Neko told me the other day "If we didn't see it, it didn't happen" in regards to not seeing greens, even though I was seeing literally 100-110 on either side of a testing gap, and suggested a dose increase. That statement is complete nonsense and downright dangerous.

You said this in another person’s post. I am not replying there because that member is new and her post deserves to be about her cat. I don’t know who you mean by an experts clique. I was an R user, I also had a high dose cat with IAA, and a few other conditions too. I am just trying to help Sebastian, it really is about the cat for me.

As I said yesterday, those greens you saw after I suggested the increase, could have been from a delayed R effect. It happens. It doesn’t mean the Lantus dose by itself was giving you green. And besides, all you saw were upper greens, which means you do have enough room for an increase, even if it had been the Lantus giving you green. You test enough, you are an experienced user, increasing to bring down the nadirs and the high points was not a dangerous suggestion for you. And yes, I consider the caregivers experience in my suggestions.

Like the others here, I really do hope for the best for Sebastian in the future,
 
You said this in Hettie's post and just wanted to respond but didn't feel it was appropriate or fair to do it in her condo

Meanwhile, I saw @Gill & George respond to @Beth 73 that he was hesitant to suggest a dose increase because there were some lower numbers on either side of a gap and they could have gone lower.

So the data I was looking at on Elmo's SS was 9/6/2019
basically Elmo dropped 70 points in one hour from +4 to +5, then he bounced, not only did he bounce, but he bounced hard (he had HI readings for one whole cycle), he also appears to be clearing bounces every 3 to four cycles, and he had not that long ago seen a 58 (AT) on 1.25u it is all those factors combined that 'niggled', I suggested holding for one more cycle to give him a chance to clear the bounce and see where that took him he did clear the bounce dropping 250pts that day, but not seeing anything better than yellow.
Could she have taken him up the day before? Sure she could have, but that move would have been a little riskier, shooting an increased dose as a bounce starts to clear can really make the BG plummet and seeing as CG has just swapped to SLGS I thought that a slightly more cautious approach might suit better here.

If you didn't understand why I suggested that approach to Beth, you could have asked on her condo, I would have been happy to explain it more in detail in her condo, I have always tried to answer your questions and explain my thought process to you in Sebastians condos, I'm sorry if that hasn't come across.
Perhaps I should have gone more into it in my post to Beth, I'll bear that in mind when commenting in the future, a bit rusty after so much time of the board.
 
I'll be sorry to see you and Sebastian go. We haven't interacted, I don't think, but I've read some of your condos and appreciated the input you've been giving others on theirs. Good luck to you both, hope Sebastian continues to do well!
 
I didn't see any reason to continue the high-jack of Hettie's thread, therefore I am replying to comments you've made to me here in your thread today:
It's getting a little old, you people treating me like an idiot. We said basically the same thing but you want to quibble over semantics and act like I'm so stupid I don't know what the word "crucial" means instead of just trying to be helpful and answer my question? You're acting like a child. Ridiculous behavior, especially for a moderator.
No, Justin. We did not say the same thing... nor is anyone treating you like you're an idiot. We are not quibbling over semantics. Not even close. You said,
I'd be interested to know why you don't consider it a good fit right now.
Not considering R as a good fit is not the same as R being crucial at this time... or any of the other definitions I've purposely provided for clarification as well as your consideration. There appeared to be a need for clarification after reading your response... which I've provided. All this other stuff... "treating you like you're an idiot"... "acting like you're so stupid"... yes, I agree. Sigh... it is very child-like and ridiculous.

That said, I do wish you and Sebastian nothing but success and all the best.


EDITED TO ADD:
There was also an explanation that went along with my comments:
IMHO, at this time, the use of R is secondary to getting the basal dose brought back up to speed. In other words, I have no idea why the vet, or any vet, would reduce the basal dose to 1 unit. Currently, the dose is back up to 2 units, but it took a 3.25u dose to pull BG numbers down to green less than 2 weeks ago. It'll likely take the same or more to do it again. Just my opinion... atm, the basal dose is what's of utmost importance. Then we can add a bolus if necessary.
 
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As I said yesterday, those greens you saw after I suggested the increase, could have been from a delayed R effect. It happens. It doesn’t mean the Lantus dose by itself was giving you green. And besides, all you saw were upper greens, which means you do have enough room for an increase, even if it had been the Lantus giving you green. You test enough, you are an experienced user, increasing to bring down the nadirs and the high points was not a dangerous suggestion for you. And yes, I consider the caregivers experience in my suggestions.
At the time you suggested the increase, his numbers were clearly trending downwards and had been for days. This was before we saw a green but were right at the cusp. You gave no explanation of why that downward trend should be ignored and we should increase the dose, other than "we didn't see it, so it didn't happen". That's not an explanation other than to say you were only looking at the colors on the sheet and nothing else and I just have a fundamental disagreement with that philosophy. Sure, I test enough and know how to steer but it's not a situation I want to purposely put myself in AND he's at a really high dose right now and we've seen in the past where he has been difficult to steer back up.

@Gill & George. I agreed with your recommendation to Beth & Elmo and would have done the same. I wasn't trying to say you were wrong, I was simply using it as an example of how there are people on these forums who are regarded as experts who are giving conflicting advice and it makes it very confusing and difficult for the rest of us. Diabetes treatment is complicated and overwhelming enough, everyone really needs to figure out how to get on the same page with the advice that is given.

@Jill & Alex (GA) Yeah, not much else to say. I do hope you consider what I said and take a step back and look at how things are running. The noteworthy advice givers need to be on the same page with their recommendations. And you guys always say ECID and at the end of the day the CG is the one holding the syringe, yet I make decisions on Sebastian's care that people don't agree with and that turns into something you have to investigate? That sucks, for everyone. Maybe I suggested things to other CGs that people didn't agree with and that was the problem but a quick PM to hash it out would have been greatly preferred.

And I'm sure I'm not blameless. I'm headstrong and follow my gut and don't care much for the rules if the job needs to get done or someone needs help and I know that attitude doesn't always mesh well with a diverse crowd. And I do still support and appreciate everything that everyone has done for me here. I know Sebastian wouldn't still be here if not for the information and support I got from you all, and I'm pretty confident I've learned enough that we can continue on so the biggest loss for me is being able to pass that help on to others. In the end, I know more good was done than harm so best of luck, I'll still point people in this direction whenever I can.
 
The noteworthy advice givers need to be on the same page with their recommendations.
No sir. That's an incorrect assumption you're making. Advice givers do not have to be on the same page with their recommendations. There are no experts that make up this board. What we do have is a lot of dedicated volunteers who give generously and freely of whatever time they can to help other caregivers of diabetic cats and their kitties. The levels of experience and basis of knowledge may vary greatly. The FDMB is purposely operated as a peer-reviewed message board. We are very proud of and celebrate that status.
And you guys always say ECID and at the end of the day the CG is the one holding the syringe, yet I make decisions on Sebastian's care that people don't agree with and that turns into something you have to investigate?
Whoa! You're hitting 0 to 60 faster than the Bugatti Veyron Super Sport!

I had to investigate?

You were investigated?

Trust me. There was no investigation of any kind.

There was never any thought or concerns about "an investigation" or the need for any sort of investigation... ever.

None.what.so.ever.

I don't know where you're getting this kind of info? All my comments remain as written in the original thread if you wish to review.
Maybe I suggested things to other CGs that people didn't agree with and that was the problem but a quick PM to hash it out would have been greatly preferred.
FWIW, if I (or any other Moderator), had any questions or concerns you would have received a private message... just as others have when a Moderator or board administrator has questions or concerns. It's a very effective method of communication/gathering information when needed/necessary.

"IF" you had suggested things to other caregivers that people didn't agree with they would have simply posted their thoughts as well as why they didn't agree with you. Again, it part of the beauty of a peer-reviewed message board such as the FDMB! No PMs necessary. No big deal.



Best of luck to you, Justin.
Goodnight.
 
wish you and Sebastian all the best. Sorry to see you go. I have enjoyed watching Sebastian's journey and recovery.
Words flying. A bit of misunderstandings? STRESS. WE ALL ON THIS FORUM ARE under. Different degrees of, different amounts of.

I too have thought your spoken words (“this will be my last post. Seems I’m no longer welcome here...”), too often.
Feelings of my- me, Krystina not fitting in- I’ll go away silently “I’m sure no one will notice- care?”
But yah wanna know what?!?
I haven’t (obviously). And yah wanna know what else; why? One. Word. Nelli.
I was wrong. There are more than not on this forum who really care about Nelli. Who share valuable recommendations- for Sebastian and you too... wouldn’t you agree?
It realized, selfish it would be for me to follow thru on my (silent) thoughts.
I get it. I know where you are coming from. I read your- see, believe your genuine desire to learn everything you can to help little Sebastian. I’ve seen you try to “fit in.” after your interaction in your condo on 8/22.
I hope you haven’t given up...Take the good, the ruthless, the compassionate, the contradictory wisdom/unfriendly... with a grain of salt. I have. Nope, not easy, but I know (and appreciate!) there are many peeps on this board, interested in Sebastian- wanting to help you help Sebastian.
Sebastian. Think.

Did you know that you can block ones who upset you? You can.

I hope you genuinely reflect on your decision and bring sweet Sebastian back. This forum, I know you know, in your heart of hearts, can help you help Sebastian get better- become happier and, get healthier.
Consider sneaking back in :), won’t you?

Ps. Ps. I love that avatar of sabastian- looking cuter than cute. Looking happy :cat: :bighug:
 
Justin

I’m sure you probably won’t read this if you are, in fact, leaving. I would hate to see you leave because of disagreements. Every board has them. And as Jill pointed out, this is a peer review board. There are other boards that have designated experts and senior members. Newer members wait around for an “expert” to comment. There are probably less differences of opinion on those boards but I’ve visited them and don’t believe they work as well as this board.

Here, there are no experts. There are more experienced members to help with the really complicated situations but there are also less experienced members who have a lot to offer a new member.

I’d just like to pass along a few things:
  • Jill, Wendy, Sienne, Dyana, and I have been here a very long time and we can all tell you that there’s a lot more to reading and interpreting a SS than most people think. In fact, none of us ever stop learning because ECID and we do still see some cats that are complex enough that we really have to put on our thinking caps to figure the best suggestion(s) to make.
  • Building on that, I have seen so many members over the years get upset over something and leave only to come back because they realize they can’t do it on their own. You might think you can. But believe me, even in year five with Gracie, there were times that I needed to ask Jill to look at her SS because I was too close to it all and couldn’t see the patterns. The last few days before Gracie crossed, her numbers went crazy and I don’t know what I would have done without Jill and Libby making suggestions. And that was with 5.5 years of dealing with FD and knowing Gracie.
  • Krystina made a great point and that whether you leave or stay shouldn’t be based on you but on Sebastian.
  • While I hate for any post to be overlooked, it happens. It’s really unfortunate you didn’t get help with R. I’ve read the condos so I’m not going to go back through why yours didn’t get attention but.....why didn’t you PM one of us experienced R users? Members PM me all the time and ask for me to pop into their condo or fix a SS or read labs because they know I’m not always on every day. Instead of going it on your own, a PM to one of us would have gotten the help you needed.
I wish you and Sebastian the best. Perhaps after you’ve had a chance to think about it, you’ll realize the door to FDMB is always open.
 
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