johnt
Member Since 2016
Ugh, the forum doesn't send notices if you are sent a notice, and there are more replies before you visit the first notice. This is not bad, I love Xenforo and as someone that's a security/programming/web development person this is by far the best option, however it also keeps me from noticing.
this will be long, REALLY long. But i'll start at the beginning. keep in mind, i have Huntington's disease which affects my memory greatly so i might miss time lines. but i documented as much as i could.
Honestly i don't believe my previous vet may have had a lot of information about feline diabetes. That may sound rude, but from what I've learned since it seems that way.
This will take a bit.
Wilbur started having seizures when he was about 2. Back then I didn't know they were seizures I thought he was choking. they were very infrequent. maybe twice in a couple years.
After talking to a friend that's also my family doctor she told me it sounded like a seizure, not choking. Recommending I take him to the vet. i was asking her about it at the time because Wilbur was very sick and I was unsure what to do.
I took Wilbur to a vet at one point because he was lethargic, couldn't pee etc. When I took him in he had what I figured, a UTI. However, while there the doctor told me that he has diabetes (this was about 6 years ago). She ended up setting me up with this 'pen' to administer insulin. I believe he was about 4 then. his glucose was 400 when they tested him (i think)
I took him to that vet because when this happened I was not near an emergency clinic (lived in a small town then). I went to the place that opened first because I was afraid he was on his way out. I honestly don't remember the dosage then bvut it was tiny
A few days later I took him to my normal vet. They told me that they prescribe ProZinc there, and that's what I should start him on.
Upon their advice I started him on 2u every 12 hours. Things were fine for a while but a few months later he had another seizure at around 10pm. After getting through it, about 8 hours later he had another. I took him to the regular vet when that happened.
She told me she was unsure what it was, but suspected he might be epileptic. To monitor him and let her know if it happens again. I did, over and over and she kept telling me he might have epilepsy, that he shouldn't have had a seizure one hour after I dosed him with ProZinc at his 2u for PM dose. She told me the seizures wouldn't kill him, to just make sure he's safe when they happen.
Mind you, the seizures weren't really times specifically to the dosing. Except the last one. I also did not know how ProZinc worked. I thought if I gave him a shot it should work right then. The last seizure he had was again once at night and another about 8 hours later.
I honestly don't remember how the raise in dose happened, but i know i took him in for a curve and when i picked him up they raised me to 10u/10u. I asked if they were sure, they said yes. Somewhere before this they put him on the phenobarbital saying he had epilepsy but i don't remember them ever doing a test for it.
i stayed the course for a couple years. Now it's oct 2016 and I'm moving my mother to Arizona to be close to her family. She's not well, losing eye sight so I moved her in to care for her (divorced). Obviously my cats came with me. Wilbur had stayed at 10u/10u that whole time (couple years)
Also, after each of the seizures I took him in for, they said his blood sugar was over 500 when tested. Although most times the seizures had happened 8 hours before i could get in since they were at night and they were closed
I found a new vet here. They were very nice, and receptive. the doctor did what felt like a very thorough exam. When complete, he first told me he didn't believe Wilbur had epilepsy. He also said 10u was a LOT. but he didn't want to adjust too much. he took him to 9u/9u.
Over the next month I weaned Wilbur off Phenobarbital. I took him back in and he was in good shape. Sometimes I could test him but it wasn't often. he was very difficult. Wilbur has been off Phenobarbital since approx dec 2016
Also at the new vet I told them I was on a very limited budget, and giving Wilbur 10u twice a day meant a vial of ProZinc would last me just about 3 weeks. It was $120 per vial and at this point It's expensive. he told me they prefer Vetsulin and it would be about half the cost. He said it should be fine to switch him so i did.
At some point he lowered me to 8. So that's what I did. i could sometimes test him when he was zonked out and I could sneak up. he had to be in a very deep sleep. those were normally around +6 to +8.
I called the vet because the readings seemed too low to me. Many times it would be under a hundred. Sometimes in the 90s, one time as low as 63. He then lowered me to 8u/8u
When he got sick again was about Jan 30. I was afraid maybe he had too much insulin to i tried to test him and suddenly it worked. he fought in a little and i'm not very good at hitting the sweet spot yet so it takes a couple tries most times. Sometimes i get it first shot.
From then on is when i started testing through the day, using that old spreadsheet. I immediately took him down to 4.5 because his numbers were low. they've since climbed. but when i called the vet back is when he told me to keep him at 4.5 and make sure he was over 200 before dosing him .
that's where I'm at today.
PS. Wilbur is difficult to feed. both in specific food, and timing. he eats VERY frequently, usually somewhat small amounts. I'd say he eats about every 30 to 60 minutes. then at night he'll go several hours without eating.
over time he started gaining weight. he stopped roaming around and playing in the last year. He started getting fatter then.
When i took him in august this year he weighted 25.4 pounds. When I took him back a few days ago he was 26. so he gained about .5 pounds over about 4 months.
But i have a VERY hard time with food. Partly because I have 3 rescues, they all live together. they all eat together and they all graze. Wilbur gets a wet simple servings (Meow Mix) maybe 4 times per day now because I'm trying to get him off so much dry food. But he doesn't really eat it. he licks it to death but leaves almost all the meat. I used to grind up his meow mix pate at 1/1 water/food. But suddenly he stopped wanting it, and that was over. I started using the wet food as a treat to make sure I could feed him prior to dosing. I have never injected him without knowing he's eaten first.
I spend a lot of time dealing with him, but i get frustrated after awhile because everything is a challenge
So that's probably written very badly, and I apologize. I'm also ADD and it's very difficult to sit that long
this will be long, REALLY long. But i'll start at the beginning. keep in mind, i have Huntington's disease which affects my memory greatly so i might miss time lines. but i documented as much as i could.
"See there is so much I keep hearing from my previous vets, new vet, then forums. I was explicitly told that the 12 seizures Wilbur had were due to high glucose levels. For 6 years I thought that's what the problem was, so once it started getting over 450 I began to panic. it was so hard on him."
Can you explain exactly what was said/diagnosed at the time of these episodes? The advice we give here is based on what we see with the vast number of members’ cats. If your cat was diagnosed with something like episodes of hyperglycemic hyperosmolar syndrome or another rare condition we need to know that. In a case like that we, as non veterinary experts, wouldn’t be able to give the usual guidance. Has Wilbur been seen by a veterinary specialist like one in internal medicine or endocrinology?
We want to help but we need clear information about what has happened in the past. You also mentioned in a recent post that he’s been on ProZinc before Vetsulin. It would be helpful to know why the insulin was changed.
Honestly i don't believe my previous vet may have had a lot of information about feline diabetes. That may sound rude, but from what I've learned since it seems that way.
This will take a bit.
Wilbur started having seizures when he was about 2. Back then I didn't know they were seizures I thought he was choking. they were very infrequent. maybe twice in a couple years.
After talking to a friend that's also my family doctor she told me it sounded like a seizure, not choking. Recommending I take him to the vet. i was asking her about it at the time because Wilbur was very sick and I was unsure what to do.
I took Wilbur to a vet at one point because he was lethargic, couldn't pee etc. When I took him in he had what I figured, a UTI. However, while there the doctor told me that he has diabetes (this was about 6 years ago). She ended up setting me up with this 'pen' to administer insulin. I believe he was about 4 then. his glucose was 400 when they tested him (i think)
I took him to that vet because when this happened I was not near an emergency clinic (lived in a small town then). I went to the place that opened first because I was afraid he was on his way out. I honestly don't remember the dosage then bvut it was tiny
A few days later I took him to my normal vet. They told me that they prescribe ProZinc there, and that's what I should start him on.
Upon their advice I started him on 2u every 12 hours. Things were fine for a while but a few months later he had another seizure at around 10pm. After getting through it, about 8 hours later he had another. I took him to the regular vet when that happened.
She told me she was unsure what it was, but suspected he might be epileptic. To monitor him and let her know if it happens again. I did, over and over and she kept telling me he might have epilepsy, that he shouldn't have had a seizure one hour after I dosed him with ProZinc at his 2u for PM dose. She told me the seizures wouldn't kill him, to just make sure he's safe when they happen.
Mind you, the seizures weren't really times specifically to the dosing. Except the last one. I also did not know how ProZinc worked. I thought if I gave him a shot it should work right then. The last seizure he had was again once at night and another about 8 hours later.
I honestly don't remember how the raise in dose happened, but i know i took him in for a curve and when i picked him up they raised me to 10u/10u. I asked if they were sure, they said yes. Somewhere before this they put him on the phenobarbital saying he had epilepsy but i don't remember them ever doing a test for it.
i stayed the course for a couple years. Now it's oct 2016 and I'm moving my mother to Arizona to be close to her family. She's not well, losing eye sight so I moved her in to care for her (divorced). Obviously my cats came with me. Wilbur had stayed at 10u/10u that whole time (couple years)
Also, after each of the seizures I took him in for, they said his blood sugar was over 500 when tested. Although most times the seizures had happened 8 hours before i could get in since they were at night and they were closed
I found a new vet here. They were very nice, and receptive. the doctor did what felt like a very thorough exam. When complete, he first told me he didn't believe Wilbur had epilepsy. He also said 10u was a LOT. but he didn't want to adjust too much. he took him to 9u/9u.
Over the next month I weaned Wilbur off Phenobarbital. I took him back in and he was in good shape. Sometimes I could test him but it wasn't often. he was very difficult. Wilbur has been off Phenobarbital since approx dec 2016
Also at the new vet I told them I was on a very limited budget, and giving Wilbur 10u twice a day meant a vial of ProZinc would last me just about 3 weeks. It was $120 per vial and at this point It's expensive. he told me they prefer Vetsulin and it would be about half the cost. He said it should be fine to switch him so i did.
At some point he lowered me to 8. So that's what I did. i could sometimes test him when he was zonked out and I could sneak up. he had to be in a very deep sleep. those were normally around +6 to +8.
I called the vet because the readings seemed too low to me. Many times it would be under a hundred. Sometimes in the 90s, one time as low as 63. He then lowered me to 8u/8u
When he got sick again was about Jan 30. I was afraid maybe he had too much insulin to i tried to test him and suddenly it worked. he fought in a little and i'm not very good at hitting the sweet spot yet so it takes a couple tries most times. Sometimes i get it first shot.
From then on is when i started testing through the day, using that old spreadsheet. I immediately took him down to 4.5 because his numbers were low. they've since climbed. but when i called the vet back is when he told me to keep him at 4.5 and make sure he was over 200 before dosing him .
that's where I'm at today.
PS. Wilbur is difficult to feed. both in specific food, and timing. he eats VERY frequently, usually somewhat small amounts. I'd say he eats about every 30 to 60 minutes. then at night he'll go several hours without eating.
over time he started gaining weight. he stopped roaming around and playing in the last year. He started getting fatter then.
When i took him in august this year he weighted 25.4 pounds. When I took him back a few days ago he was 26. so he gained about .5 pounds over about 4 months.
But i have a VERY hard time with food. Partly because I have 3 rescues, they all live together. they all eat together and they all graze. Wilbur gets a wet simple servings (Meow Mix) maybe 4 times per day now because I'm trying to get him off so much dry food. But he doesn't really eat it. he licks it to death but leaves almost all the meat. I used to grind up his meow mix pate at 1/1 water/food. But suddenly he stopped wanting it, and that was over. I started using the wet food as a treat to make sure I could feed him prior to dosing. I have never injected him without knowing he's eaten first.
I spend a lot of time dealing with him, but i get frustrated after awhile because everything is a challenge
So that's probably written very badly, and I apologize. I'm also ADD and it's very difficult to sit that long