The day is finally here! OTJ trial starting tomorrow for Noah!

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MélanieW

MélanieW

Member Since 2017
The day that at first I thought would never come is finally here. Noah has been doing great for the last 14 cycles on the 0.1 dose. I will give him one last dose tonight and I will start the OTJ trial tomorrow. Bad timing since I have to go to the office tomorrow morning so I'm hoping I have a green tomorrow morning :eek:

I will be back later today or tomorrow to post in the supply closet some of my insulin. I would like to help out and give back after all the amazing help I had here. We would not be here without the FDMB board and it's amazing people. I wanted to do it last week, but things have been so crazy busy. My car broke down and I decided to buy a new one. All in a day. :oops:

Sending hugs to all who need them today! :bighug::bighug::bighug:

Mélanie

PS: Noah says thank you :cat:
 
Congrats to you and Noah. :)
Hoping all goes well tomorrow and he continues to stay OTJ!

Gizmo just started in Feb. I hope we get there someday.
 
Gill & George said:
Fantastic numbers from Noah.

Can I ask how you were measuring the 0.1?
Click to expand...

It was a struggle. I tried following the instructions on the Fine dosing sticky, but I don't think my dosing was consistent! I did my best! If we need to go back on insulin, I will probably buy calipers because the microdosing has been way too difficult for me.
 
MélanieW said:
It was a struggle. I tried following the instructions on the Fine dosing sticky, but I don't think my dosing was consistent! I did my best! If we need to go back on insulin, I will probably buy calipers because the microdosing has been way too difficult for me.
Click to expand...

So this method then?
01unit-1.jpg


Do you know how many drops were in that draw??

The reason I ask is that some of us (I did this) move from the 0.1 dose to some insulin.
George had a similar controlled descent down the dosing scale. After a week on the 0.1U I did the some insulin. It's the easiest microdose dose to do.
You press the syringe plunger firmly, whilst holding it firmly down you insert into the insulin, release, the plunger will spring back a tad and draw a small amount of insulin (I found it to be about half a drop)
the image to the right below
DROP20DOSING_zpspwfcxphl.jpg

Anyways I did that for a weeek and then went to the trial, at the time I was told that it had been found that it could aid a stronger remission, and TBH I was terrified of stopping the insulin altogether. It's up to you of course, Noah has had fantastic numbers, but just wanted to give you the info I was given at the time.
 
Gill & George said:
So this method then?
01unit-1.jpg


Do you know how many drops were in that draw??

The reason I ask is that some of us (I did this) move from the 0.1 dose to some insulin.
George had a similar controlled descent down the dosing scale. After a week on the 0.1U I did the some insulin. It's the easiest microdose dose to do.
You press the syringe plunger firmly, whilst holding it firmly down you insert into the insulin, release, the plunger will spring back a tad and draw a small amount of insulin (I found it to be about half a drop)
the image to the right below
DROP20DOSING_zpspwfcxphl.jpg

Anyways I did that for a weeek and then went to the trial, at the time I was told that it had been found that it could aid a stronger remission, and TBH I was terrified of stopping the insulin altogether. It's up to you of course, Noah has had fantastic numbers, but just wanted to give you the info I was given at the time.
Click to expand...


Yes the method in the first picture. But now I'm thinking I was doing it wrong because I only got one drop. It wasn't as big as the second image (left needle). Maybe a bit bigger that the right needle. I can try the drop dose, but I think it's pretty close to my 0.1 unit dose. I should have gotten calipers :banghead:
 
Since Noah has been very consistently in nice, safe numbers on the dose you have been giving him, it wouldn't hurt to try the one drop for a week, just to see if it is any different than what you have been doing. Noah will let you know if he doesn't need it! As Gill said, the longer you give the pancreas that extra support, the better your chances are for a strong remission. I know you are very excited about starting a trial, but I also know you want what is best for Noah. The choice is yours, and no one will judge you, whichever decision you make. We're all so excited to see how well he is doing!

BTW, don't give away that insulin until you have completed the Trial - don't want to jinx anything!!!! ;)
 
I'll try the drop dose. So OTJ trial postponed for a week! And I'll wait to give away some of my insulin (I'll keep some but I just bought 5 cartridges and still have three left). I've probably jinx it about 50 times already, but let's hope for the best! Thank you all for the advice.
 
Calipers are a help, but when the dose is so tiny it is hard to see, even with the aid of the calipers. So, carry on! It's great that Noah will be starting the trial tomorrow.
 
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