Melissa and Celle
Member Since 2011
She's on Lantus now, but since I got so much help here trying to get Levemir to work, I thought I'd share the good news.
The first four doses at 3.75 units looked like I expected, then I had a fur shot, which seemed to throw things totally off, and then suddenly for four days straight we get nothing higher than a 313?? As far as I'm concerned this is the dose we want. Chasing perfection led to months of really, really bad numbers on Levemir and a very slow climb back to where we are on Lantus.
I also thought it's worth sharing my experience here for those that come after me. Basically I'm convinced that what I was doing with Levemir was NOT the right thing to do. Pre-shots kept climbing as the dose went up. With Lantus, I didn't see that. Pre-shots didn't fall for a long time and seemed to increase in variability, but at least the average value held steady while the middle of the curve fell.
Of course, I don't really know what exactly I was doing wrong because two things changed. For one, the insulin changed -- maybe Levemir just doesn't work for everyone. Second, I held doses for a long time (at least a week, and longer when I thought she might be bouncing and needed more time to get used to the reduced values). I was raising the Levemir dose every 3 days. Perhaps I was too conservative with Lantus and kept her high for longer than she needed, but it's hard to recover if you go too fast.
I just hope things hold for a while and I'm not declaring victory too soon. I do have a couple of questions now that we're in new territory of low numbers:
The first four doses at 3.75 units looked like I expected, then I had a fur shot, which seemed to throw things totally off, and then suddenly for four days straight we get nothing higher than a 313?? As far as I'm concerned this is the dose we want. Chasing perfection led to months of really, really bad numbers on Levemir and a very slow climb back to where we are on Lantus.
I also thought it's worth sharing my experience here for those that come after me. Basically I'm convinced that what I was doing with Levemir was NOT the right thing to do. Pre-shots kept climbing as the dose went up. With Lantus, I didn't see that. Pre-shots didn't fall for a long time and seemed to increase in variability, but at least the average value held steady while the middle of the curve fell.
Of course, I don't really know what exactly I was doing wrong because two things changed. For one, the insulin changed -- maybe Levemir just doesn't work for everyone. Second, I held doses for a long time (at least a week, and longer when I thought she might be bouncing and needed more time to get used to the reduced values). I was raising the Levemir dose every 3 days. Perhaps I was too conservative with Lantus and kept her high for longer than she needed, but it's hard to recover if you go too fast.
I just hope things hold for a while and I'm not declaring victory too soon. I do have a couple of questions now that we're in new territory of low numbers:
- (1) Given her data, what pre-shot values would make you nervous? She's so variable, that I expect to eventually get something significantly lower than I've seen so far.
(2) I'll have some time off over the holidays. What data is most important to get? I don't want to torture her with a curve every day just because I'm home.
(3) Does this dose so far seem safe enough for my sitter to use while we're gone (for four shots) over Christmas, given that the sitter doesn't check BG?