Nope - he got his food at AMPS. Now its +6 and he's only 277.....its cycle 7 since dose increase and he is higher. Even NDW wouldn't last this long. I wish I could increase now rather than on Saturday as I already know this dose is not enough.
I had/have chiari 1 malformation. Not sure if you've heard of it? Its where the lower part of the brain is in the neck as the skull stopped forming before the brain did. Had it from birth but only discovered after an MRI due to the constant migraines. Its pretty scary. They removed part of the skull and let out the membrane beneath - a bit like letting out a pair of jeans and sewing in a patch. Was NOT fun at all. Due to having that, I've had several falls and damaged almost every joint I have including my back. Hence me saying my health is not good and needing to rest (not staying up late nights to test). I have to be careful not to have a setback.
I think mine were more hormonal related. I used to live on Advil migraine and go into a dark room with some quiet and an cooling bag around my neck. The slow increases are frustrating. Maybe I should have gone right to 2.5 as this dose has done nothing but bring him higher. Nearly two weeks since last blue.You never know... he might take a bit longer to come down some more but if you are holding till Saturday then you will know for sure if he needs more juice, which is the way it looks like now. Overall he is looking a little better in the sense the numbers are evening out. High they are though.
Mine stopped when I started chemo, of course then everything stopped!
I have had a couple of headaches since but they are have been more related to muscle tension and dehydration.
I think the deal with both protocols is to know what the dose is doing and how low it’s taking him. Because I’m home today and getting tests in and know he’s not going low - I am leaning towards increasing 0.25 tomorrow. And then doing a curve on Saturday. Anyone think I should NOT do this?I am not familiar enough with SLGS, but I wonder if the every 7 day evaluation is because they assume you are doing curves then, today would probably count as a curve, perhaps you’d have some wiggle room to increase because of that? I honestly don’t know, you’d have to ask someone more familiar, I’m learning SLGS mostly through your experience with it as I’ve never tried it.
ETA: not to do a .5 increase but a .25 earlier than this weekend increase
Neither to both - no fur shot and there is never any food in this house lol! I don't cook at all and they probably eat better than me!
Yes I know what the protocols say and I am not "mixing and matching" as I am NOT doing TR or anywhere close. But I am "knowing my cat" and know that this dose is not taking him where he needs to be. So because I am home and know that even on cycle 8 this dose is not even close I am increasing - well aware of what I am doing. There is no risk to Silver as I do know he is not close to green or even blue on this dose. I am not planning increasing until cycle 9 which is well past the 3-8 cycles and stabilization of the depot. Although - on TR, they increase after 6 cycles (once they know the nadir) - so the depot must stabilize earlier than a week or TR people would be constantly increasing on an unstable depot - just my thoughts on that. As they say ECID and I believe I am quite safe to increase. If this dose was taking him any where near blue then I would wait. And I only ever plan to have one curve on each dose, as generally, curves are only possible on Saturdays. This week is a one off as I am home.SLGS was adapted from the original 5 steps that was used on the FMDB. In those five steps it indicated to hold for at least a week. It looks like the SLGS method in the sticky note was adapted a bit to how Lantus and Lev works specifically. Someone can correct me if I am wrong here. But the holding for a week is the same. TR allows for quicker increases @Stacy & Asia can confirm this, however in both protocols is the statement not to mix and match the two, that it can lead to some wonkiness that would be difficult to figure out.
I also think, NOT AN EXPERT, that it can take up to 3-8 cycles to really understand where the dose is taking them sometimes. Get that depot stabilized to the current dose. ECID different on the timing of that.
I know with Jones, it used to show up in 3-4 cycles but that was the old Jones, the new one is being a little more tricky.
A pro to your plan would be that you would have 4 cycles in and will be doing the curve on the 5th cycle.
A con to your plan would be that you are not waiting the full week to ensure the depot has stabilized before increasing the dose again.
You have got a lot of extra testing in lately and you will have 1 curve on this dose....
No help what so ever...
You hold the syringe...
I know. And thanks. Its good to have some info to mull over so I can be confident I've thought things through before making a decision.
you can just see the quizzical look. Thanks! He was after my food! He tips his head from side to side as he begs. If it’s chicken he gets a little off my plate.Silver is such a cutie. That face
A very pink and yellow curve day - and not a blue in sight
for real. Enough to addled the brain and shake the gnashers.
