Stefania S
Member Since 2023
Hi all,
Recap: after a scare when the Libre sensor was dying, while showing me a graph dipping into th 50s I first skipped a dose then went to a half dose (from 2 units to 1) until I could get a new sensor put on. Maybe I was wrong to do that, but in the moment it felt like the safe thing to do. (they told me later that it can show much lower numbers when it's about to quit, and that normally it tends to show about 10 less especially in the lower numbers).
This earned me a disapproving message the Endocrinologist. He actually took time from his very busy schedule to write me an email for the first time just to scold me and tell me to stop trying to reach them by phone. He didn't even remember Jessi is a cat, and referred to her as 'your dog'. That happened right after a vet on his team scolded me for lowering the dose and messing up injections.
All of this combined with extreme fatigue and stress, triggered a huge meltdown. But onward we go.
Anyhow, now we have a new sensor. The vet (one of the vets on the Endo's team) told me to stay at 1 unit for a day just to monitor the levels before raising it to 2. I asked about going incrementally, but she said this is too imprecise.
She wrote to tell me to do 2 units in the morning and 1 at night. Does that seem right???
She did ask me to remind her (them) to check the sensor results every 2 or 3 days. Yes, that's right, I have to remind them.
I admit I feel a bit caught between their indications and yours especially since they are the ones putting the sensor on and monitoring it (in theory) and giving dose instructions accordingly. They get a little miffed when I go my own way and if I do it too much of that I am sure they will tell me to find another vet. I don't want to do that because very few if any other vets here in Bologna have experience with the sensor and with FD, from what I can tell. A lot of vets here refer their patients to this guy (his name is Fracassi) for FD and at home monitoring with the sensor. I don't want to rock the boat so much that I lose them, no matter how spotty their guidance is.
I know, you need a spreadsheet. And I need someone to help me plug in all the numbers. I will start on my own but it will be slow. I just can't do that for very long every day, even now I have so many things piling up as I put more and more attention on Jessi. She's waiting for me as I sit and write this.
So what do I do? Go with what they are telling me? Is it ok to do two different doses like that? I guess they're trying to avoid a Hypo or just avoid me freaking out when I see low numbers. But can her little body deal with two different doses like that? And is it ok to just jump to 2 from 1, which is really 1.25 because I did increase it a little already
Oh and they told me I don't need to test for ketones at home. I know you'll like that one. Good news is Ketones were at 0 yesterday when we went for the sensor. I had to ask them to test for them. They didn't even check her glucose levels even though I asked for that too, or weigh her, which I forgot to ask. They were just going to put the sensor on and send us on our way.
I guess they just expected me to know that they are only handling the sensor and dosing aspects, for everything else I have to work with a different Vet. I thought he was going to do a lot more than that given his reputation as some kind of genius. Oh well...
I promise I will get to the spreadsheet soon. I am also putting together the Hypo toolbox, which is taking some time. Can you believe it is really hard to get corn syrup here? But the Gourmet Gold (aka Fancy Feast) arrived along with some treats and other things I ordered. Bit by bit, I'm getting it all together...except for sleep and my own physical health, that is...I'll work on that too soon...
AM preshot was 350, lowest number scanned was 131 at +4
Spreadsheet in progress...
https://docs.google.com/spreadsheets/d/1AATN9cUaVniKMpt-T8kcoaNTP6WjcUz-ISFTD7SFOPM/edit?usp=sharing
(with the sensor I take readings at all different ours, not precisely in on hour increments so I wasn't sure how to enter the readings. For example, if it is at +4.5 where do I enter it, in +4 or +3?)
Recap: after a scare when the Libre sensor was dying, while showing me a graph dipping into th 50s I first skipped a dose then went to a half dose (from 2 units to 1) until I could get a new sensor put on. Maybe I was wrong to do that, but in the moment it felt like the safe thing to do. (they told me later that it can show much lower numbers when it's about to quit, and that normally it tends to show about 10 less especially in the lower numbers).
This earned me a disapproving message the Endocrinologist. He actually took time from his very busy schedule to write me an email for the first time just to scold me and tell me to stop trying to reach them by phone. He didn't even remember Jessi is a cat, and referred to her as 'your dog'. That happened right after a vet on his team scolded me for lowering the dose and messing up injections.
All of this combined with extreme fatigue and stress, triggered a huge meltdown. But onward we go.
Anyhow, now we have a new sensor. The vet (one of the vets on the Endo's team) told me to stay at 1 unit for a day just to monitor the levels before raising it to 2. I asked about going incrementally, but she said this is too imprecise.
She wrote to tell me to do 2 units in the morning and 1 at night. Does that seem right???
She did ask me to remind her (them) to check the sensor results every 2 or 3 days. Yes, that's right, I have to remind them.
I admit I feel a bit caught between their indications and yours especially since they are the ones putting the sensor on and monitoring it (in theory) and giving dose instructions accordingly. They get a little miffed when I go my own way and if I do it too much of that I am sure they will tell me to find another vet. I don't want to do that because very few if any other vets here in Bologna have experience with the sensor and with FD, from what I can tell. A lot of vets here refer their patients to this guy (his name is Fracassi) for FD and at home monitoring with the sensor. I don't want to rock the boat so much that I lose them, no matter how spotty their guidance is.
I know, you need a spreadsheet. And I need someone to help me plug in all the numbers. I will start on my own but it will be slow. I just can't do that for very long every day, even now I have so many things piling up as I put more and more attention on Jessi. She's waiting for me as I sit and write this.
So what do I do? Go with what they are telling me? Is it ok to do two different doses like that? I guess they're trying to avoid a Hypo or just avoid me freaking out when I see low numbers. But can her little body deal with two different doses like that? And is it ok to just jump to 2 from 1, which is really 1.25 because I did increase it a little already
Oh and they told me I don't need to test for ketones at home. I know you'll like that one. Good news is Ketones were at 0 yesterday when we went for the sensor. I had to ask them to test for them. They didn't even check her glucose levels even though I asked for that too, or weigh her, which I forgot to ask. They were just going to put the sensor on and send us on our way.
I guess they just expected me to know that they are only handling the sensor and dosing aspects, for everything else I have to work with a different Vet. I thought he was going to do a lot more than that given his reputation as some kind of genius. Oh well...
I promise I will get to the spreadsheet soon. I am also putting together the Hypo toolbox, which is taking some time. Can you believe it is really hard to get corn syrup here? But the Gourmet Gold (aka Fancy Feast) arrived along with some treats and other things I ordered. Bit by bit, I'm getting it all together...except for sleep and my own physical health, that is...I'll work on that too soon...
AM preshot was 350, lowest number scanned was 131 at +4
Spreadsheet in progress...
https://docs.google.com/spreadsheets/d/1AATN9cUaVniKMpt-T8kcoaNTP6WjcUz-ISFTD7SFOPM/edit?usp=sharing
(with the sensor I take readings at all different ours, not precisely in on hour increments so I wasn't sure how to enter the readings. For example, if it is at +4.5 where do I enter it, in +4 or +3?)
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