10/30 Max AMPS 472

I’m so hoping that this switch will be good for Max. I was never sorry for switching. I did have to fast track my dose back up, but ECID. Have a wonderful Saturday, Lori.
 
Good morning, Lori. I hope the switch to Levemir helps your boy. I often thought about switching Susie but didn't want the later nadir. How is he doing? Eating well and acting okay?
 
Thanks, Max is doing okay. He’s just been a little more sleepy than usual over the past few days but otherwise doing fine.
 
Suzanne & Darcy said:
I’m so hoping that this switch will be good for Max. I was never sorry for switching. I did have to fast track my dose back up, but ECID. Have a wonderful Saturday, Lori.
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I’m not sure when to ask for help with fast tracking since we changed to Levemir. I know we need to give it some time and see how he responds to it. How long do I give him on this dose before I need to ask?
 
Max & Lori said:
I’m not sure when to ask for help with fast tracking since we changed to Levemir. I know we need to give it some time and see how he responds to it. How long do I give him on this dose before I need to ask?
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I see on my spreadsheet that we started him in 70 percent of his former Lantus dose. I see that after three cycles and he was running high we started increasing back up again. Don’t worry! I have a feeling that Wendy will be here for you all the way! She was for me!
 
When we increased after those few cycles, Wendy said I could start increasing by about 10 to 15 percent of the total (new Levemir) dose. She also said it was complicated in the beginning because you still have some of the old Lantus depot as well as the new Levemir depot building up.
 
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In my case it was even more complicated because I had been using Novolin R insulin as well — as a supplemental insulin to get his numbers down (couldn’t afford any more expensive insulin he was on soooo many units). So that was in play as well. And we had already started the Cabergoline, but when we first started Lev it hadn’t kicked in yet. Lots of things going on. In your case you have the SRT working for Max and you don’t know when things will start changing. But you are such a good caretaker of Max. I know he will do well. Levemir really helped smooth things out for us!
 
Suzanne & Darcy said:
In my case it was even more complicated because I had been using Novolin R insulin as well — as a supplemental insulin to get his numbers down (couldn’t afford any more expensive insulin he was on soooo many units). So that was in play as well. And we had already started the Cabergoline, but when we first started Lev it hadn’t kicked in yet. Lots of things going on. In your case you have the SRT working for Max and you don’t know when things will start changing. But you are such a good caretaker of Max. I know he will do well. Levemir really helped smooth things out for us!
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I’m hoping it will for us too! I’m excited to see what it’s going to do for him. Just trying to get my boy feeling better again. I know I’ve put him through a lot at one time but hopefully all of these things will start getting him better.
 
Max & Lori said:
I’m hoping it will for us too! I’m excited to see what it’s going to do for him. Just trying to get my boy feeling better again. I know I’ve put him through a lot at one time but hopefully all of these things will start getting him better.
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❤️❤️and you can spend more time with your grandkids again! How many grandchildren do you have and what are their ages?
 
One of my grandchildren has a rare genetic problem in which requires her to be on a ventilator when she sleeps. She stops breathing when asleep. She is almost 2 years old. She has a tracheostomy. She is otherwise normal and very active. I was keeping her some before, to give her mom a break, but I haven’t been as much since all of this with Max happened. They all still come over to my house a lot to play. Thanks for asking.
 
Summer and Susie (GA) said:
Praying for your granddaughter. Poor thing. Are there chances that she will improve as she grows older?
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Well we hope so but the doctors say she won’t. The part of her nervous system that controls respirations just shuts off when she goes to sleep. She does well with everything though. Thank you for your prayers.
 
It takes special kinds of parents, and family, to help a disabled child for the rest of their lives. God bless you, your family and this little girl. I believe in miracles. I hope your little granddaughter gets hers.

I hope the Freestyle Libre makes your life so much easier. I always wanted to get one but was afraid Susie would somehow pull it off.
 
Max & Lori said:
One of my grandchildren has a rare genetic problem in which requires her to be on a ventilator when she sleeps. She stops breathing when asleep. She is almost 2 years old. She has a tracheostomy. She is otherwise normal and very active. I was keeping her some before, to give her mom a break, but I haven’t been as much since all of this with Max happened. They all still come over to my house a lot to play. Thanks for asking.
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Oh bless her heart! Is there any chance she will outgrow this condition?
 
Oh wait. I see that you said the doctors say she cannot outgrow this. Well we will see. I believe in miracles too. I’m happy that she’s otherwise normal and happy. I bet y’all love her a ton! I’m wondering how this condition was first discovered when she was an infant. I bet that was a difficult and frightening time.
 
Yes, I did. I just filled it in. Thought it was there but it must not have saved before. It’s there now. If you see this tonight just let me know if I need to increase in the morning @Wendy&Neko
 
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