MeowMomma
Member Since 2019
Hi all!
We have been doing the sugar dance since September 2019 and I feel like we are going backwards instead of forward. I'll share a bit of our back story below.
My Handsome baby was diagnosed on 9/12/19. We went thru all the mess of being given the wrong food, given no direction on home testing etc. For the first month my fear took hold and I didn't test before shooting. Let me just say in big capital letters - HOME TESTING CAN SAVE A LIFE! We've been home testing (AlphaTrak) since October and I'm grateful to have gotten past my fear. It took a near hypo event for me to get my head straight and realize I simply have no choice.
He was put on Lantus 1u every 12 hours to start. Numbers were still high, vet increased to 2u on 10/26. Numbers were still bouncing within 300, 400, 500's with a few dips into the 200's. Vet increased to 3u on 11/29. I wasnt comfortable with that increase but didnt listen to my gut and did it. I did a curve the day the increase started to keep a check, but now realize it prb wouldnt show up that fast. Tested that night at 5:30 and he was at 62 (dangerously low). Had I not been doing home testing, I would have fed him and then given the 3u, with a potentially deadly outcome. He ate 6 oz of Fancy Feast chicken pate and I tested again at 8pm, was 104. Tested again at 10pm, was 303. Too scared to guess what to do so NO SHOT! A sleepless night let me tell y'all! I felt totally lost on what to do from there. I emailed my vet directly and did call in that night, but just to relay information. When they decided to get back to me, it was over 24 hours later and the advice was - under 100 give 1U, over 100 give the 3U. From reading the FB group (which I love), I knew that was VERY wrong. I had his records transferred to a new vet three days later. Sadly the new vet may be just as lost, but we have a decent relationship in that he knows I won't follow his advice blindly. He doesn't use Lantus but agreed to give me scripts as that's what we are using. Handsome did have a touch of diarrhea for about a week and I started using Fortiflora and it cleared right up so I am continuing to give that once daily. Handsome had a fructosomine test on 1/10/20 and it was 342. Vet's advice? Hold the dose! That simply can't be the correct advice as that's just an average and he is still having numbers in the 300's, 400's and 500's.
So - from the beginning of January we have basically been on our own with all this. On the advice of an admin from the FB group, I started over with 1U for a week, then curve. Then bumped it up .25 each week, holding the dose for a week and then doing a curve. I've been trying to get random checks in as well other than the test/feed/shoot times, as my work schedule allows. As you can see from his spreadsheet - he is all over the place, and currently on 2U.
We need dosing advice in the worst way!! And please be kind. I have been very fearful to post here for fear of looking stupid and having someone say as much, lol. I am a FB girl and much prefer that format - but here we are!
My apologies if this should be posted elsewhere or the title isn't correct. I wasn't sure to post this here OR the Lantus area.
Thanks for reading and for any advice anyone may have.
https://docs.google.com/spreadsheets/d/1n7Tt4VXKQb987y-JO3FGMJYKgyTC4nZBNpB61UHpv1w/edit?usp=sharing
We have been doing the sugar dance since September 2019 and I feel like we are going backwards instead of forward. I'll share a bit of our back story below.
My Handsome baby was diagnosed on 9/12/19. We went thru all the mess of being given the wrong food, given no direction on home testing etc. For the first month my fear took hold and I didn't test before shooting. Let me just say in big capital letters - HOME TESTING CAN SAVE A LIFE! We've been home testing (AlphaTrak) since October and I'm grateful to have gotten past my fear. It took a near hypo event for me to get my head straight and realize I simply have no choice.
He was put on Lantus 1u every 12 hours to start. Numbers were still high, vet increased to 2u on 10/26. Numbers were still bouncing within 300, 400, 500's with a few dips into the 200's. Vet increased to 3u on 11/29. I wasnt comfortable with that increase but didnt listen to my gut and did it. I did a curve the day the increase started to keep a check, but now realize it prb wouldnt show up that fast. Tested that night at 5:30 and he was at 62 (dangerously low). Had I not been doing home testing, I would have fed him and then given the 3u, with a potentially deadly outcome. He ate 6 oz of Fancy Feast chicken pate and I tested again at 8pm, was 104. Tested again at 10pm, was 303. Too scared to guess what to do so NO SHOT! A sleepless night let me tell y'all! I felt totally lost on what to do from there. I emailed my vet directly and did call in that night, but just to relay information. When they decided to get back to me, it was over 24 hours later and the advice was - under 100 give 1U, over 100 give the 3U. From reading the FB group (which I love), I knew that was VERY wrong. I had his records transferred to a new vet three days later. Sadly the new vet may be just as lost, but we have a decent relationship in that he knows I won't follow his advice blindly. He doesn't use Lantus but agreed to give me scripts as that's what we are using. Handsome did have a touch of diarrhea for about a week and I started using Fortiflora and it cleared right up so I am continuing to give that once daily. Handsome had a fructosomine test on 1/10/20 and it was 342. Vet's advice? Hold the dose! That simply can't be the correct advice as that's just an average and he is still having numbers in the 300's, 400's and 500's.
So - from the beginning of January we have basically been on our own with all this. On the advice of an admin from the FB group, I started over with 1U for a week, then curve. Then bumped it up .25 each week, holding the dose for a week and then doing a curve. I've been trying to get random checks in as well other than the test/feed/shoot times, as my work schedule allows. As you can see from his spreadsheet - he is all over the place, and currently on 2U.
We need dosing advice in the worst way!! And please be kind. I have been very fearful to post here for fear of looking stupid and having someone say as much, lol. I am a FB girl and much prefer that format - but here we are!
My apologies if this should be posted elsewhere or the title isn't correct. I wasn't sure to post this here OR the Lantus area.
Thanks for reading and for any advice anyone may have.
https://docs.google.com/spreadsheets/d/1n7Tt4VXKQb987y-JO3FGMJYKgyTC4nZBNpB61UHpv1w/edit?usp=sharing
