No more pokees needed. Yes I think you can go back to the fat 0.5u again tonight.
IAA is Insulin Auto Antibodies. Basically an auto immune condition whereby her body blocked her from using the insulin. For awhile Menace was on 16u twice daily.
How is Ashley today?
Ok I'll give the fat 0.5 u again. I'll post what his PMPS is. Wow 16 u twice a day. Boy our poor cats get everything. I'm so happy that she's in remission. That must have been some battle for you, if anyone could get their kitty into remission is you.
Just a little bit about Ashley. Back when she was 19 she was laying on the floor and went to get up and felt like someone gripped the top of her head and pulled it back. Immediately she felt pain and almost passed out.
Took her to the ER and they did an x Ray and saw nothing just said had a military neck, don't know if I used the right word, it was just that her neck wasn't the way it should be.
Went home with muscle relaxers, used heat and ice. It really never felt right.
Then she started to get headaches 24/7. Had to drop out of college.
I took her to every neurologist, NYC, N.J
They were giving her meds for migraines, which they weren't.
She said they felt like a vice grip was around her head.
Had every diagnostic tests, MRI of the neck, brain, facet injections, Botox, I mean you name it she had it. I am a neurotic when it comes to medical stuff.
Now we went to a headache center in Philadelphia, PA. Thomas Jefferson.
They admitted her for 2 weeks and did lidocaine infusions to try to break the cycle .
Did this twice. Did not do anything.
Then went to Michigan Head and Neurological. There for 2 weeks, trying other type of infusions. Forget about it.
Went to Houston to see another specialist, waste of time and money.
Used up all of my husband's life insurance money.
There were other places we went to but I'd be here writing a novel
Now she had TMJ also, went to a specialist here in NJ. They did a MRI and she was bone on bone. But that was not causing the headaches.
He told us the top TMJ surgeon was in Florida.
Flew there he did another MRI and also asked her about her headaches and made us watch a film on Comples Regional Pain Syndrome/ RSD.
We call it CRPS for short.
To this day I swear what happened to her neck was crps.
I can't believe that people can get this disease as simple as having blood drawn, or spraining an ankle.
So she has the jaw surgery, called a fat graft, they cut you right in front of the ear and take fat from your stomach and put it where the disc was.
Both sides were done, it was living hell for the first 3 days for her.
Had to stay in Florida for 2 weeks, see the surgeon every other day.
Had to wear this type of mouth piece with rubber bands , could only take it out for 15 minutes three times a day, do exercises and eat, then put it back in
As the weeks went buy you were able to leave it out longer, and so on.
Came home and she had to have a special mouth piece made to wear at night , every night. More to it, but it's too long to go into.
Now she started to have pain on one side after a year, flew back down and come to find out the one side had bone growth, not good.
Guess what another surgery on one side
When people have this surgery most of them have to get braces put on , but the doctor said he was satisfied with her bite and didn't need braces, plus with crps in her face she never would have been able to handle wearing them.
Long story short , the doctor in N.J. made her the mouth piece per the surgeons instructions and if it had to be adjusted a lot that would mean either she was losing fat, etc. He was supposed to notify the surgeon of any changes. He trained under this surgeon. We kept telling him to look at her bite and he much it was starting to open and shift.
He said well you would never be able to handle another surgery because of the crps, well we knew that. She would have to have an osteotomy. Saw your jaws in half, bring the lower jaw forward put it in the correct position, held together with about 30 screws.
So now not only is she in pain with the crps , her jaw is killing her. Plus when the jaw is off it causes pain in the head, neck, etc.
If she makes a bite you can see right into her mouth, her lower jaw has receded, and it's going to one side.Shes only touching on one tooth.
She's going to take pictures of her mouth , already wrote the surgeon a letter and we want to know why we were never told this could happen. This guy thinks he's God, went to Harvard.
Then the other guy in Jersey didn't do his job correctly, never sent her for a scan called a cone bean scan to see wgwh was happening. I already had it out with him and it wasn't pretty.
One thing about Ashley's crps, she has symptoms that other people don't have.
We've seen 3 crps doctors and they all said they have never seen anyone with it that bad in their ears like Ashley does.
Linda no lying if you drop a fork in the sink and she is by you, the ear pain will start immediately. That is why she can't go outside because how can you avoid noise.
She only goes to doctor visits and she has to ask them to talk very low, then if course we have to explain why.
If she talks to long herself she gets pain. In the summer when everyone is mowing their lawns, and then those damn blowers I have to put her in the car and go sit somewhere until they are done. It's the same thing in the winter time with the snow blowers.
She uses this compound cream to put on her ears just to be able to lay on her side to sleep . Ketamine, gabepentin, Valium, and lidocaine.
She used to be able to take it right from the jar and put it on, but the last year, if it was to cold it would start off pain on the outside and inside of the ears.
Stabbing, pulsing, nerve pain.
So now she has to wrap the jar in a heating pad and if it's to warm the same thing happens. She just can't win. She is petrified every time.
So when this happens it might take about a week to go away.
Well now it's taking longer to go away.
This just happened a week ago with the cream and she is dying in so much pain Linda.
Stabbing, throbbing, pressure like feeling and her head and eyes.
It should be getting better by now but it's not.
She hasn't slept yet since yesterday morning, no fooling.
I was up with her all night , she is in so much pain that she's shaking from the pain.
She was like a wild dog last night, she's going out of her mind.
I could do nothing for her, I just wanted to put my hand through a window in anger that she has this disease.
She's afraid it's not going to get a little bit better because it's lasting so long.
So am I.
Another weird symptom she can't eat anything that's room temperature, anything cold.
Every damn thing she eats I have to put it in the microwave and get it to the right temperature so she can eat it, if it's too hot or to cold and she takes a bite out if it the pain starts in her teeth,leads to the eyes and then her ears.
This is no way to live. The loniness is driving her crazy. She never had the chance to experience life, love, going to work ,etc.
I can't tell you how I cry when I look at her while she's sleeping.
I say how the hell and why did this happen to her.
There is so much more I can tell you but you must be sorry you asked me how she was doing lol
Her best girlfriend who had the same disease killed herself last year.
She was the same age. They met on a support group and hut it off immediately.
They talked on line , little did we come to find out she lived 15 minutes away from us.
Her name was Jen. Besides having crps she also has trigeminal neuralgia.
They spoke about 4 times a day on line. I met with her mom before she died and her mom knew that Jen would do it, because she just couldn't take the pain any longer.
She tried everything also, the stimulator she had put in made things worse.
She said to her mom that she had nothing to live for but extreme pain.
I may sound horrible but I understand what she meant, so did her mom. But her mom cried to me that day and said I don't want to loose her but she didn't want to see her in pain any longer. I hope I don't sound heartless to you.
So we planned to take Ashley over to see Jen and to just hug each other , even if it was for only 10 minutes, but unfortunately it was to late
Annie her mom called me and I could tell in her voice that Jen was gone.
I cried like a baby.
I had to go inside to tell Ashley because I was outside on the phone at the time.
I can't even tell you how Ashley broke down.
She knew something was wrong when she didn't hear from Jen and the last time they spoke Jen said she loved her.
Even though they only knew each other for about 4 months, it was like they knew each other for years.
I belong to a lot of support groups and you wouldn't believe how many people have taken their lives.
I worry about what happens when I die, what's going to happen to Ashley.
Linda to tell you the truth , she prays every night that she dies in her sleep.
She says to me Mom I don't want to live like this anymore, but I'm afraid to do what Jen did.
Do you know what that does to me. I don't want to see her in pain every damn day, but I don't want to lose her either.
Can you understand that, do I sound awful
It's like she's in jail.
Right now nothing is letting up, meaning Ashley's pain.
I pray every night that I will wake up and she tells me she feels a little better.
Aren't you glad you asked me how she was doing.
I'm sorry I wrote a novel. I chew your ear off enough with Tyler.
I appreciate you listening to me Linda.
Well going to test Tyler now, let's see what he's up to.
Will let you know
@MrWorfMen's Mom
Guess I'll be reordering the filing tomorrow! Miss Menace has been pilled and fed and is now luxuriating in a clean up session. Wish my life was that easy. Create havoc, get someone else to clean up the mess and then jump to my demand for a meal, have that person prepare and serve me my meal and then go soak in a tub. What a life! HAHAHAHAHA!
