Great job shooting! I think he's going to do well tonight.
Take a step back and look at Sprocket's spreadsheet-- look how far you guys have come! It used to be a lot of red and pink, now you're all in yellow and blue with the occasional green. You've made fantastic progress, and are doing an amazing job taking care of him!
I do think you need to try to take care of yourself, too... Take little break, treat yourself with something-- a nice walk, a sweet treat, a hot bath (my favorite-- the best for relaxing!), whatever works for you. The FD road is hard and stressful, you have to find a way to do it that works for you. You've already got a very demanding schedule of medications to administer, and you've added on pretty close monitoring of food intake on top of that. If I were you, I'd back off on trying to interpret responses to food from day to day and making yourself responsible for that, too. Maybe one way to think of it is this: you are using insulin to try to manage his numbers, and food to keep him safe. I don't think it's worth the amount of stress it is causing you to try to connect the numbers to the food-- it doesn't really work and you've got other things to occupy your attention. You've got bigger fish to fry.
I don't think there's anything odd going on-- really, this is exactly what you want to see. If you'll look at my Amber's spreadsheet, we were stuck in yellows until I started shooting the occasional blue pre-shot she gave me. Then I started to see more blues, and then greens, and then she went OTJ. Lantus is really good at keeping low pre-shot numbers low in nice flat cycles-- eventually you will see these low pre-shots as a gift, because shooting these is the best way to get Sprocket to spend a lot of time in good, safe, pancreas-healing numbers.
Hang in there! It's stressful and frustrating, but you are doing a great job!
Thanks Nan, I do see how good he is doing compared to a month or so ago.
And from what i have learned these bgs would be good if he was not ketone prone.
I looked at your ss, and I do notice you were shooting alot less in dose.
Thats the part that freaks me out with Sprocket now. Its not the blue at pmps, its the high dose of insulin he is on at that blue pmps.
Then for next 5 hours or so I will test and feed so he doesnt drop too much. That is what freaks me out.
I am glad I shot a little less tonight. (I did 3.5 instead of 3.75).
And now he will probably bounce.
So now i dont know if I should stick with 3.5 or go back to 3.75?
I was going to go up to 4units tomorrow before this happened.
But now this shows me the dose is working and the bounce is just acting weird I guess.
Now I dont feel like 4units will be an option as he is now getting into lower blues like we wanted.
I know everyone says to wait till he earns a reduction by going under certain bgs but if I am feeding so he doesnt go too low I would think that is same thing?
I cant just sit and let him drop to show people how low he can go. That doesnt sound very safe or responsible to me.
My poor little guy is so exhausted. We both are. I wake him alot to feed or test.
He does have less meds now. He takes 3 after insulin at am& pm.
He has ondansetron, cyproheptidine, famotidine.
Then about 2pm he gets fluids (he only has a few days left till he stops that) and his ursodiol after fluids or about 2pm hour.
So he has reduced in 3 or 4 meds. Plus all his meds are compounded into liquid now.
Reason i have been talkig food issues is because it was appearing the carb was playing a part in his higher bgs in 200s.
Now i dont know what is happening.
I am trying to figure out a daily plan for having certain carb counts at same times each day.
Suggestions are helpful.
Thanks