Doodle has Hyperaldosteronism

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Michelle and Doodle

Member Since 2009
I’m not sure where I should be posting this… but it didn’t seem appropriate to clutter up the health board when this is more of an announcement rather than a request for help. So hopefully this is okay.
Some of you may know that Doodle has been struggling with low potassium for months now - despite receiving quite high supplementation. (12mEq a day) He has had vet visits every 10 days to 2 weeks for months as well, and we have run bloodwork and urinalysis and ultrasounds and more bloodwork... trying to figure out what is going on with him. Those tests showed that he also has high sodium and hypertension. (He is also drinking and urinating a lot)
At first we thought he had kidney disease but his values didn’t seem bad enough to be the primary problem. (though we did have a couple of worrisome weeks where his kidney values spiked) Then we thought maybe he was hyperthyroid – but those values were, at worst, “ in the gray zone” for his age… and I was told that we’d just have to recheck him in a few months.
I also found out that feeding him a low-magnesium diet (simply because it was also low phosphorous) may not have been the smartest thing, since that can cause low potassium. (thank you Jess)
Ultimately my vet decided that he probably was in the beginning stages of kidney disease and that he additionally had primary hypertension that was unrelated. I was not convinced.
I found some articles referring to an adrenal gland disorder called Hyperaldosteronism (or sometimes Conn’s Syndrome) that made me suspicious (the symptoms being refractory low potassium, hypertension and high sodium) and I was finally able to convince my vet that it was worth checking out.
Here’s a good link describing Hyperaldosteronism -- http://support.mspca.org/site/PageServe ... osteronism
Although his last ultrasound (done by his regular vet) showed nothing remarkable going on with his adrenal glands - the serum aldosterone test confirmed my suspicion. His level is 675 – with a normal range of 194 -388. My vet has discussed this with some of her collegues and now believes that this is a very underdiagnosed issue.
Although we still are not 100% sure that this is “Primary” Hyperaldosteronism, she said that since we have ruled out kidney disease, hyperthyroidism and heart problems as the primary cause, that it is likely. (Some literature says that a definite diagnoses of primary hyperaldosteronism is not made until the level is 6 times higher than the reference)
So at this point my options are to treat the symptoms as I have been doing (possibly adding Spironolactone) and monitor his values. Or to go see a specialist for a higher resolution look at his adrenal glands and a possible surgical consult if there is anything visible.
Honestly, I’m not sure what I’m going to do. It’s taken me a few days to even post this because I don’t know what this really means… I don’t know for sure if there is some sort of abnormal growth on his adrenal gland that is causing this or not – (since we haven’t seen it) and I don’t know if I’d feel better knowing… Surgery of this sort is risky due to the location.
All I know for sure is he seems to be feeling pretty darn good lately … and that I love him to the moon.
 
((((Michelle and Doodle)))) At least you finally know what you're dealing with, even if you don't yet know what it means. You're such a good mommy to stay so dedicated and make the vet learn something! So good to hear that Doodle is feeling so well these days...that's all that truly matters at the end of the day. Best of luck with figuring out the next step.
 
((((((((((Michelle)))))))))) Yes, the most important thing is to have Doodle feeling good. You are so dedicated to research his problems so thoroughly. Good luck and scritches and vines to Doodle.
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((((Michelle and Doodle))))
Hope you are able to figure out what to do for Doodle - he sure is a lucky little guy and I'm so glad to hear that all this isn't making him feel too terrible (at least at this time). Does FLA State have a vet school? I know UF does... Good luck. :YMHUG:
 
(((Michelle and Doodle)))

I knew if there was something that the vets could not dx you would somehow come up with it Michelle. I am glad to hear that he is feeling good.
 
trust doodle to come up with something rare :(
(((michelle))) (((doodle)))
if you start spironolactone, will you temporarily stop amlodipine?

btw i think that's cosmo's beloved dr B in that pic :Þ
wonder if he's seen any hyperaldosteronism cases
 
Knowing what you're dealing with is a big first step -- and thank goodness that your vet listened to you. And LL is the perfect place to post.
 
Good that you know something - it's always better to know your enemy to be able to fight it.

So now what? Is your vet office going to talk it over and get a plan together for you guys?

Good luck with however you guys proceed.

A happy cat is what you want, so it's great to hear Doodle is looking good lately.
 
I love Doodle to the moon and back too. I'm glad you posted here. I'm glad he is feeling good, that seems to count for a lot. I have no medical advice, of course. I'm glad you did your homework and found an answer, and I know you'll make the right decision about what to do next.
 
Thanks everyone. It IS good to know what we're up against...
And Doodle has had a nice day, cruisin the 70's :mrgreen: - so I definitely realize things could be a LOT worse!

Patricia - I don't know if Fla State has a vet school, but I don't think so. UF is only about 5 hours from here though, so that's not out of the question.

Gayle - honestly I think my vets are going to refer me somewhere else - this has been out of their comfort zone for quite some time and I honestly think I may know more than they do about this. :roll: I do like my vets... but I think unless they have someone they can consult with, then i'll need to go somewhere more specialized.

Choy-Foong - I'm not sure about the spironolactone/amlodipine thing. I'm not clear on what the right way to do it is. I've read that stopping amlodipine (or even missing a dose) can cause a spike in BP. nailbite_smile I wish I had more confidence that my vets knew how to treat this... I'm nervous about doing, well, anything. Doodle has another follow up on Tues. and I'm supposed to talk to my vet again tomorrow as well. I hope they are doing some research.
I'd like to find some answers myself but finding case studies and detailed information has been difficult since this isn't a common thing.

eta - that's cool that the picture may be of Cosmo's vet! it's weird how small the world seems sometimes...
 
We also love Doodle to the Moon too--Knowing you, I just feel that you will find a way to keep Doodle well.
Knowing what it is, is the first key to unlock this, finding how to help it will be the next--
You belong here-to us to LL always! Sending healing vines to our dear Doodlebug --Healing HUGS~!!
 
We love that phrase too Michelle - you love Doodle to the moon! Absolutely! With all of the eyes and ears here & all that you are doing, the right treatment options are bound to become apparent. You are a wonderful Mom!
 
(((michelle))) + (((doodle)))
somehow i knew you'd get to the bottom of this, michelle. whatever happens from here, you'll make the right decisions.
thanks for letting us know...
 
Michelle and Doodle said:
Patricia - I don't know if Fla State has a vet school, but I don't think so. UF is only about 5 hours from here though, so that's not out of the question.

FSU doesn't have a vet school. UF (go Gators!!! :mrgreen: - sorry, I'm a UF grad, can't help myself) has a great vet school. My parents took their dog (GA) there and had great luck. She was run over and ended up losing an eye. I took my civvie, Preston, there when I lived in Ft. Lauderdale - definitely worth the 5 hour drive. I took him to a neurologist and had a great experience. He has Cerebellar Hypoplasia .

If Logan traveled well, I would've taken him to one of the vet schools near Charlotte. I think the closest one was Virginia Tech but that's still a few hours away and Logan does not do well in the car.

Great to hear that Doodle had a great day! He's so handsome.
 
(((((Michelle & Doodle)))))
i am so glad you searched and got some answers at least. Knowledge is power as they say...
Glad to her that Doodle is feeling well and we all know that he is very lucky to have YOU!
So glad you posted here...as always, we are sending lots o prayers and positive vibes to you both...
Know you will keep us updated... :YMHUG: :YMHUG: for you both!!
 
Michelle and Doodle said:
I’m not sure where I should be posting this… but it didn’t seem appropriate to clutter up the health board when this is more of an announcement rather than a request for help. So hopefully this is okay.

All I know for sure is he seems to be feeling pretty darn good lately … and that I love him to the moon.

((Michelle)) and ((((((((DOOOOODLEBUUUG)))

I love that he feels good! I also especially love how much you love him.

kisses and scritches to the ever handsome Doodle.
 
Michelle,
About your vets, I have to say that if you like them, then maybe you can save them ... help them along a bit.

I found that where I take my two was very frustrating because they knew next to nothing about FD, and it was like pulling abscessed wisdom teeth to get anything done. Now, that we have gotten positive results for Shadoe and Ollie, my vets have sort of perked up a bit and are really getting more interested and have been digging around on their own!
Granted they are still newbies :lol: so I have to watch them and coax them along in spots, but they ARE improving.

If you are spoon feeding them info and they seem to be catching on and bringing some of their own info to the table, maybe you can stick with them.

Good luck on however you proceed and I hope Doodle stays in that feeling good zone.
 
((((Michelle))))

What a great detective-mamabean you are!It's amazing that you figured this out. As everyone else said, it's better to know what you're dealing with than to be scratching your head.

I'm glad that Doodle is feeling good and I hope you guys can all put your heads together and come up with a great course of action. I'm sure you will.

Lots of hugs to you both :YMHUG: :YMHUG:
Caryl, Alex & Jackson
 
Hey (((((Doodlebug))))) sending you lots of healing vines from Doodles to another cat_pet_icon

Hi Michelle you are so awesome! What a great job you are doing with Doodle :-D and nice job on your part too :-D
Glad to know he is feeling good :-D
 
((((Michelle and Doodle))) I popped in today and saw this.....I am so sad....and sending Doodle hugs and healing vibes. I hope you will get good news and results!!
 
Michelle,

I think you are right in needing to see a vet in a more specialized setting. Then the plan of action can be put together and communicated to your vet team so they can help oversee it and they will have the comfort level of someone else with the expertise leading the charge.

Congratulations to you on persevering to get the testing that was needed done for the Doodlebug. Brielle sure has a great role model to grow up with (you, that is, not necessarily Doodle...unless you like her coughing up hairballs). I've followed more of this search over on FB but wanted to post here to show my support to the moon and back for you guys.

Karen
 
Just wanted to send hugs to you and Doodle. You've done such a great job diagnosing. I know you'll figure out the right thing to do next.

Healing thoughts and vines aplenty coming your way.
 
(((Michelle)))

If anyone will get to the bottom of this.. it will be you!
Sending you hugs .. and Doodle scritches..
and... many healing vines!
 
Michelle and Doodle said:
eta - that's cool that the picture may be of Cosmo's vet! it's weird how small the world seems sometimes...

Oh! That IS Dr B!!!

He's clean shaven for the summer though. I'll tell him he was referenced on this board next time I see him.

How's Doodle today?
 
you know what to do. but i'll type it out for you okay? i'm only typing what you already know, you know. lol.
basic rule of medicine: to tx you need dx.
yes this is far far out of your primary vet's comfort zone. doodles is not a guinea pig. he needs to go to the Ones That Do Know, the specialist, about this. further diagnostic work is needed. there you will receive the guidance you seek and don't have to scour the intertubes trying to become a vet at home yourself and make decisions about medications and stuff by yourself. how does that feel? stressful no? his levels are not high enough to say 'w/o a doubt' that he has hyperaldosteronism, not saying he doesn't have it ~however have been saying for a long time that there HAS TO BE an underlying reason he can't hold his potassium and his other symptoms, but this is perfect example of when the specialist soooooooo should be brought into picture. this is what they are there for. turn the reins over to those that have spent their lives dealing with things like this and are deep in their comfort zone with things like this and let them help you help doodles.
the 5 hour drive will be well worth it. k?


no need for me to say more. see told you you already knew all that. :mrgreen:
~jojo

ps. ya know now when i'm out feeding my ferals and see the big moon in sky i'll be thinking about doodlebutt every time. loved to the moon and back. great phrase. :)
 
Cyn and Cosmo said:
Michelle and Doodle said:
eta - that's cool that the picture may be of Cosmo's vet! it's weird how small the world seems sometimes...

Oh! That IS Dr B!!!

He's clean shaven for the summer though. I'll tell him he was referenced on this board next time I see him.
Hey Cyn. Ask him also if he's seen any feline patients with hyperaldosteronism? Since his pic appears on that page?
 
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