Barb and Tori
Member Since 2009
Hi everybody. I haven't been around for a week or so. A lot has been going on not just with Tori but with my son as well. Some of you may remember that he has been ill for some time now and that the doctors really don't know what the heck is going on with him. His symptoms have been getting worse and new problems keep showing up. Anyway he's been going through a real hard time emotionally. His primary doctor has told him that he should apply for disability benefits. He's only 23. It's been a very bitter pill for the both of us to swallow. We're both really wondering if he will ever get his life back. So as you can imagine a lot of my time has been devoted to him .
Now to Tori. Since Doug called and told me about his concern about her weight I have been doing my best to try and fatten her up a bit. I've been trying the kitty buffet routine. I think I went about it a bit too enthusiastically and she wound up with diarrhea for what I think is the first time in her life. I discovered that she really likes the Merrick especially the Grammy Pot Pie so she's been eating that along with her regular food.
Yesterday was Chemo Day and she received the Cyclophosphamide which is given orally. Well her CBC is fine. He also drew a chemistry profile but that had to be repeated today after she fasted overnight because her blood is so lipemic. Not a surprise as this has happened before. Her weight is down again from 2 weeks ago. She has lost another 0.2Kg. When Doug examined her he agreed that the bump has again become a lump and he also felt a couple of more bumps which would be along the node chain. These could be just inflammation or could be spread of the lymphoma. So now we have to decide what we are going to do. Doug is going to get in contact with the oncologist in Calgary to discuss whether we should change her chemo protocol, go back to every week or what. The problem is that there isn't really a standard protocol for this type of lymphoma. It's just not that common and there has only ever been one study done. I'm just so frustrated and am feeling totally defeated right now. The treatments of choice were just not possible for Tori. Surgery was impossible -she probably would have stroked or bled out or wound up with a facial paralysis. Radiation just isn't doable either. Now the chemo isn't doing its job and we don't really know what to try next. I'm so scared.
Tori really feels punky today after the chemo. She didn't give a hoot that she couldn't eat this morning and she turned up her nose at everything I offered her .
I did start her on Mertazapine this morning. Hopefully that will help. SHe has now lost over a pond since August. She has seen a lot of yellow in her numbers lately and I upped her dose to 1.5 this morning.
So that's where we're at. Hopefully we'll get some answers soon and my baby girl will start feeling better soon. Sorry this was so long.
Now to check out how the rest of LL is doing.
Now to Tori. Since Doug called and told me about his concern about her weight I have been doing my best to try and fatten her up a bit. I've been trying the kitty buffet routine. I think I went about it a bit too enthusiastically and she wound up with diarrhea for what I think is the first time in her life. I discovered that she really likes the Merrick especially the Grammy Pot Pie so she's been eating that along with her regular food.
Yesterday was Chemo Day and she received the Cyclophosphamide which is given orally. Well her CBC is fine. He also drew a chemistry profile but that had to be repeated today after she fasted overnight because her blood is so lipemic. Not a surprise as this has happened before. Her weight is down again from 2 weeks ago. She has lost another 0.2Kg. When Doug examined her he agreed that the bump has again become a lump and he also felt a couple of more bumps which would be along the node chain. These could be just inflammation or could be spread of the lymphoma. So now we have to decide what we are going to do. Doug is going to get in contact with the oncologist in Calgary to discuss whether we should change her chemo protocol, go back to every week or what. The problem is that there isn't really a standard protocol for this type of lymphoma. It's just not that common and there has only ever been one study done. I'm just so frustrated and am feeling totally defeated right now. The treatments of choice were just not possible for Tori. Surgery was impossible -she probably would have stroked or bled out or wound up with a facial paralysis. Radiation just isn't doable either. Now the chemo isn't doing its job and we don't really know what to try next. I'm so scared.
Tori really feels punky today after the chemo. She didn't give a hoot that she couldn't eat this morning and she turned up her nose at everything I offered her .
I did start her on Mertazapine this morning. Hopefully that will help. SHe has now lost over a pond since August. She has seen a lot of yellow in her numbers lately and I upped her dose to 1.5 this morning.
So that's where we're at. Hopefully we'll get some answers soon and my baby girl will start feeling better soon. Sorry this was so long.
Now to check out how the rest of LL is doing.
