Diane you know how you are driving somewhere, and thinking about other things and sort of "driving on auto pilot"? Well, I think that is what you did last night. But instead of driving, you tested, measured the insulin, and shot Tyler on "auto pilot".
Give your daughter Ashley some hugs from all of us here.
Sending best wishes to your dad too.
Life "s**ks" for you and your family right now.
Hi Deb, I guess that's what happened, it was all a blur.
Ashley's been on Lyrics for a long time now and its doing sh*t
Her pain management doctor mentioned awhile ago there were other need they
could try for nerve pain but she would have to get off the Prozac she's been on.
As if that's been helping. Going to talk with him and find out what he had in mind
and if he had other patients that might have been on Lyrics and switched to
whatever meds he is talking about and if it worked better.
Then talk to her psychiatrist about weening her off the Prozac and give her
something else.
Whatever he mentioned awhile ago but I don't remember why you couldn't be on
Prozac .
The sad part is that it's been 16 years now she's had it and is isolated from
everything because she can't leave the house because of noise, the cold
weather is really making things worse.
She will never know what it's like to have a boyfriend, get married, have a job
go to a store, just be part of society.
She's 35 but feel like she's still 20 because she never got to experience
life. It just breaks my heart.
I don't know how she could take this pain.
You would have to see her to believe it.
Must have taken her to at least 5 different states over the years for help
In had mentioned before her best friend took her life 4 years ago with this
disease, she just couldn't take the pain any longer. Same age as Ashley.
And all the support groups I belong to , I can't tell you how many have.
That's why it's called The Suicide Disease.
It's the highest ranking disease in medical history.
So many doctors haven't even heard of it.
It's been around since the Civil War believe it or not.
Besides nerve pain , it feels like someone poured gasoline on you and then lit a match
I wouldn't want to sit in my room for years and just be in pain , and just rot away.
The depression and loneliness is just overwhelming.
Half the sh*t you read on the internet doesn't even
touch what people go thru.
Every Nov is CRPS (Complex Regional Pain Syndrome)
Awareness Month.
People all over the world will wear Orange and will march to try to raise awareness.
Then one day in Nov Niagara Falls will light up orange, different building in different states will do the same, bridges , etc
The dam Center for Disease Control does sh*t.
Don't even get me started
Years ago a man named Charles Mattocks didca documentary called
Trial by Fire A Film Based on CRPS/RSD
His mom had it and he interviewed many people who had it.
His mom was Bob Marley's sister.
I bought 2 of the DVD's back then
You were able to watch it for free but not anymore.
You can watch some trailers of some of the people he interviewed
Sorry I wound up writing a novel
♥
