11/21 Charlie AMPS 341, +2 331, +8 359, PMPS 354

Charlie'sMom22 said:
Tuesday

Increasing to 1.5 tomorrow. I hope everyone is having a safe day. Hug your babies tight today for Helen and Noogi ❤️ 💔
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Good luck with the increase, Jess. I hope it’s a great dose for Charlie.
Keep us posted what you learn with the new testing and products you’re using from AnimalBiome.
I hope they help a great deal! 🥰

I’m so sad about Helen and sweet Noogi, it’s so hard when we lose one of our babies here 😭💔🫂
 
Ugh, I hate that you're going through this nonsense again, Jess. Hugs. Can't imagine the level of frustration. Be kind to yourself.
 
Staci & Ivy said:
Good luck with the increase, Jess. I hope it’s a great dose for Charlie.
Keep us posted what you learn with the new testing and products you’re using from AnimalBiome.
I hope they help a great deal! 🥰

I’m so sad about Helen and sweet Noogi, it’s so hard when we lose one of our babies here 😭💔🫂
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Thank you on both counts. I’ll let you know for sure! I hope they help too.

I know. I’ve been crying all day 🫂
 
Tim & Pookey said:
We really get attached to our friends here even if we’ve never met them. Very sad.
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I’d always check in on his numbers whenever I’d pop on here to post or lurk. “Oh Noogi’s doing so well” and then back to whatever I was doing. I’m going to miss seeing his little face 🥺 and I’ll miss Helen of course too. She helped a lot of us here ❤️
 
Seth&Bell said:
Ugh, I hate that you're going through this nonsense again, Jess. Hugs. Can't imagine the level of frustration. Be kind to yourself.
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Thanks Seth. I think deep down I knew this was going to happen again and that’s why I’d fly into a panic whenever he’d have one of his episodes. The most frustrating part is watching the train leave the station knowing I can’t stop it. I hate this stupid disease.

I’m still so curious why his numbers came back down the last, like, seven times he had episodes but not this time (and not that very first time). I wish I could Magic Schoolbus into his little body and figure out what’s going on in there.

Thanks again. I sure appreciate the hugs 🫂 I’m trying to be kind to myself but I’m terrible at it 😂
 
Yeah it is so wild that he just puts up a brick wall on you… I’m the same way. Easier to give that advice than take it. Give him a hug for me!
 
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